He began complaining about leg pain in January, but his parents chalked it up to growing pains until one day at school when it was so bad he was inconsolable. Within days, he was so overwhelmed, he couldn't walk.
At first, his doctor thought it might be a virus, then sent him to an orthopedist, who suggested an MRI. The results revealed a grapefruit-sized mass on Jack's pelvis. That led to a biopsy and CT scan, which showed the disease had already spread to his lungs. The diagnosis was an extragonadal yolk sac germ cell tumor.
Jack's parents first took him to the doctor on a Monday. By Saturday he'd started chemotherapy at the University of Virginia in Charlottesville, about a mile from where the Callahans live.
There was some hope that four rounds of chemo and surgery would be all he'd need, but this particular cancer was rare in children, so there was uncertainty about whether he'd require more treatment. When the chemo didn't work, Jack had to seek more advanced treatment out of state, and because Mike had family in Philadelphia, they went to CHOP.
The Callahans have been staying in the Ronald McDonald House, which provides families a place to live while their children are undergoing treatment, and haven't been back to Virginia much since they went to Philadelphia. Emily had to resign her position as the executive director of a nonprofit trade association for an autism service organization. Mike, a city planner who consults with cities around the country, has had to cut way back on his work.
Jack has undergone two more rounds of chemo and three stem cell transplants, each of which require a 30-day hospital stay. They're hoping he'll be able to leave the hospital in early December and begin radiation at the beginning of the year.
Through it all, Jack has stunned everyone with his energy, among his expected lethargic days.
"There was a point in time where he had your standard IV pole and eight pumps connected to him, and my biggest issue was keeping him from doing flips in the bed," Emily said. "He has days, too, where he's just knocked out but he just keeps on going. And yeah, it's so fitting, to me, that he really loves Gritty because, I mean, this kid has more grit than I have ever seen."